Author Archives: jule

Unrest on PBS

For those of you who are in the United States, Unrest will be coming to PBS on January 8th. This documentary is a glimpse inside one woman’s journey with Myalgic Encephalomyelitis (ME), a misunderstood, misdiagnosed, pervasive and insidious disease.  It is a love … Continue reading

Posted in Films, ME/CFS, Myalgic Encephalomyelitis | Tagged , , , , , , | 5 Comments

New Jewels

It’s been over a year since we began to remodel our house in order to install an elevator. We ended up putting in a bonus room which I immediately co-opted to be my studio. I’ve created a few pieces recently; … Continue reading

Posted in Bracelets, Necklaces | Tagged , , , | 12 Comments

Freedom! An ME/CFS Story

Today I bought an electric wheelchair and I’m overwhelmed. How is it possible to feel so many contradictory things at the same time? I cried, laughed, cried some more. The joy I felt, being able to get outside and “go … Continue reading

Posted in ME/CFS, Myalgic Encephalomyelitis | Tagged , , , | 9 Comments

#MillionsMissing

Why the hiking shoes you ask. May 25th, 2016 is dedicated to the millions of Myalgic Encephalomyelitis (ME)/Chronic Fatigue Syndrome (CFS) patients missing from their careers, schools, social lives and families due to the debilitating symptoms of the disease. ‪#‎MillionsMissing‬ and I … Continue reading

Posted in ME/CFS, Myalgic Encephalomyelitis | Tagged , , | 9 Comments

The Upfront Gallery

Studios in the Park in Paso Robles has redesigned Gallery 9 and moved it to the entry area of the studio. It is now the Upfront Gallery and is host to a multitude of unique designers and artists (yeah, I am there … Continue reading

Posted in Artists, Bracelets, Earrings, Galleries and stores, Necklaces | Tagged , , , , , | 1 Comment