Tag Archives: ME/CFS

Can You See M.E. Now?

Another year passes, and here I lay, on the couch or in bed, another one of the millions missing from participation in life due to myalgic encephalomyelitis. My family and friends must be tired of hearing about this relentless and … Continue reading

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Unrest on PBS

For those of you who are in the United States, Unrest will be coming to PBS on January 8th. This documentary is a glimpse inside one woman’s journey with Myalgic Encephalomyelitis (ME), a misunderstood, misdiagnosed, pervasive and insidious disease.  It is a love … Continue reading

Posted in Films, ME/CFS, Myalgic Encephalomyelitis | Tagged , , , , , , | 5 Comments

Freedom! An ME/CFS Story

Today I bought an electric wheelchair and I’m overwhelmed. How is it possible to feel so many contradictory things at the same time? I cried, laughed, cried some more. The joy I felt, being able to get outside and “go … Continue reading

Posted in ME/CFS, Myalgic Encephalomyelitis | Tagged , , , | 9 Comments

#MillionsMissing

Why the hiking shoes you ask. May 25th, 2016 is dedicated to the millions of Myalgic Encephalomyelitis (ME)/Chronic Fatigue Syndrome (CFS) patients missing from their careers, schools, social lives and families due to the debilitating symptoms of the disease. ‪#‎MillionsMissing‬ and I … Continue reading

Posted in ME/CFS, Myalgic Encephalomyelitis | Tagged , , | 9 Comments