Author Archives: jule

#MillionsMissing 2019

ME affects up to 2.5 million people in the United States, over 80% of them women. This disease causes profound neurological, immunological and metabolic dysfunction, resulting in a level of debility that is on average equivalent to congestive heart failure or multiple sclerosis. Yet the NIH funding for research remains abysmally low, approximately $5 per patient. Continue reading

Posted in ME/CFS, Millions Missing, Myalgic Encephalomyelitis | Tagged , , , | Leave a comment

Can You See M.E. Now?

Another year passes, and here I lay, on the couch or in bed, another one of the millions missing from participation in life due to myalgic encephalomyelitis. My family and friends must be tired of hearing about this relentless and … Continue reading

Posted in ME/CFS, Myalgic Encephalomyelitis | Tagged , , | 8 Comments

Change

Having Myalgic Encephalopathy, as with any chronic illness, you are forced to go through a continuous process of grief, for the unrelenting loss of one piece of your life after another. The actuality of ones past and present circumstance is an ever widening chasm. Continue reading

Posted in Local happenings, Making the jewelry, ME/CFS, paintings | Tagged , , , | 6 Comments

It’s Thursday!

Hi everyone! Just wanted to add a few recent pieces that I hadn’t displayed before. Have a wonderful day!   This is an antique French medallion. I love her delicate and exquisite face!
 SaveSave

Posted in Necklaces | Tagged , , , , , | 3 Comments

Unrest on PBS

For those of you who are in the United States, Unrest will be coming to PBS on January 8th. This documentary is a glimpse inside one woman’s journey with Myalgic Encephalomyelitis (ME), a misunderstood, misdiagnosed, pervasive and insidious disease.  It is a love … Continue reading

Posted in Films, ME/CFS, Myalgic Encephalomyelitis | Tagged , , , , , , | 5 Comments