Tag Archives: CFS

Can You See M.E. Now?

Posted on May 7, 2018 by jule

Another year passes, and here I lay, on the couch or in bed, another one of the millions missing from participation in life due to myalgic encephalomyelitis. My family and friends must be tired of hearing about this relentless and … Continue reading →

Posted in ME/CFS, Myalgic Encephalomyelitis | Tagged , , | 8 Comments

Change

Posted on March 15, 2018 by jule

Having Myalgic Encephalopathy, as with any chronic illness, you are forced to go through a continuous process of grief, for the unrelenting loss of one piece of your life after another. The actuality of ones past and present circumstance is an ever widening chasm. Continue reading →

Posted in Local happenings, Making the jewelry, ME/CFS, paintings | Tagged , , , | 6 Comments

Unrest on PBS

Posted on January 3, 2018 by jule

For those of you who are in the United States, Unrest will be coming to PBS on January 8th. This documentary is a glimpse inside one woman’s journey with Myalgic Encephalomyelitis (ME), a misunderstood, misdiagnosed, pervasive and insidious disease.  It is a love … Continue reading →

Posted in Films, ME/CFS, Myalgic Encephalomyelitis | Tagged , , , , , , | 5 Comments

Freedom! An ME/CFS Story

Posted on July 11, 2017 by jule

Today I bought an electric wheelchair and I’m overwhelmed. How is it possible to feel so many contradictory things at the same time? I cried, laughed, cried some more. The joy I felt, being able to get outside and “go … Continue reading →

Posted in ME/CFS, Myalgic Encephalomyelitis | Tagged , , , | 9 Comments

#MillionsMissing

Posted on May 22, 2016 by jule

Why the hiking shoes you ask. May 25th, 2016 is dedicated to the millions of Myalgic Encephalomyelitis (ME)/Chronic Fatigue Syndrome (CFS) patients missing from their careers, schools, social lives and families due to the debilitating symptoms of the disease. ‪#‎MillionsMissing‬ and I … Continue reading →

Posted in ME/CFS, Myalgic Encephalomyelitis | Tagged , , | 9 Comments