Freedom! An ME/CFS Story

Today I bought an electric wheelchair and I’m overwhelmed.

How is it possible to feel so many contradictory things at the same time? I cried, laughed, cried some more. The joy I felt, being able to get outside and “go for a walk,” to take back some normalcy, the despair and sadness at the tangible evidence of the ravages of ME/CFS, all mixed up in an overwhelming emotional storm.

But still, freedom beckons!

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I would love to be independent, to not have to be reliant on others all the time, but my walking has deteriorated and it is laborious to move my non-compliant muscles for very long. A short block had become a marathon. The parameters of  my life are mostly bound by the walls of our house. But on days when getting dressed and going outside is an option, it’s a heady prospect indeed!  So take that ME – A celebration is in order!

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This entry was posted in ME/CFS, Myalgic Encephalomyelitis and tagged , , . Bookmark the permalink.

8 Responses to Freedom! An ME/CFS Story

  1. I remember that day for me! It might not be an electric one, but I got one! It was such a joy to go to places that I know I’ve avoided due to the amount of walking. My hubby and son pushed me along and I finally got to really enjoy myself. It was nice. Congrats to you!!

    Liked by 1 person

    • jule says:

      So glad to hear that a wheelchair helps you. It is a mental adjustment to acknowledge that one is truly disabled but so freeing to do so. Hope you are having a good day today!

      Like

  2. Yay! That’s fantastic! It’s one of my bigger regrets that I didn’t get a mobility scooter when my CFS/ME was severe. I’m so glad you’ll have some more freedom!

    Liked by 1 person

  3. Jill Sadja Otero says:

    I’m so happy you made this decision! You set a great example for anyone who “fears” the wheelchair! Stay strong and determined! Freedom!

    Like

  4. Lynn says:

    Congratulations on giving ME a big kick in the pants and getting back into your life again! What a beautiful and positive action! You are strong and brave.

    Liked by 1 person

  5. Marie says:

    It’s great that you are able to get out and enjoy nature!!! 😃

    Liked by 1 person

  6. Dianne says:

    So happy to hear the news – & to know that the joy and sense of freedom triumphed in the midst of all the difficult emotions. Can hardly wait to “go for a walk” with you!

    Liked by 1 person

  7. Susan Myron says:

    YEAH! YEAH! You are great to accept taking a wheelchair in order to get out. This is so right!

    Sent from my iPad

    Liked by 1 person

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