Category Archives: Millions Missing
“We rise by lifting others.”
Reflecting on my life through blogging exposes private glimpses into personal moments, reminding me of both the joys and challenges experienced along the way. I most often find it exceedingly difficult to summon the courage to share my feelings as … Continue reading
The Ghost of ME
I step into a room filled by people with whom I once had shared lives and laughter; rejoicing and commiserating over life’s vagaries, hiking through beautiful trails, examining deep truths, and sharing heart-to-heart conversations. Yet here I am—a ghost, briefly made solid. … Continue reading
Paths and Byways
Hope lies in the roads taken and passageways still ahead, filled with kindness and compassion, laughter and love, new and old friends. It’s the unexpected paths that bring into being enlightenment and wonder and gift us with sunshine and starlight. … Continue reading
Adrift
The millions of people developing Long COVID and ME/CFS constitutes a national emergency: We need a full governmental response that is well-funded and executed with urgency. You can help by contacting your representatives, senators,the White House press, or social media to amplify our voices. #MillionsMissing Continue reading
Millions Missing 2020
When a vaccine is found for COVID-19 and life begins to return to normal, what will you do when untethered from your home? Return to work, visit friends and family, go to the movies, travel? Those of us with #MyalgicEncephalomyelitis will remain … Continue reading
#MillionsMissing 2019
ME affects up to 2.5 million people in the United States, over 80% of them women. This disease causes profound neurological, immunological and metabolic dysfunction, resulting in a level of debility that is on average equivalent to congestive heart failure or multiple sclerosis. Yet the NIH funding for research remains abysmally low, approximately $5 per patient. Continue reading
Jewels of Endearment 